Sunday, December 30, 2012

Woman opens up about rare form of dwarfism, bone-lengthening surgeries in new memoir | Essentials

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Woman opens up about rare form of dwarfism, bone-lengthening surgeries in new memoir

Wakefield High School
Wakefield High School by cliff1066™
License (according to Flickr): Attribution License
Excerpt:

Tiffanie and Eric with their son, Titan, who does not have diastrophic dysplasia. Tiffanie said because of her and her husband's combined histories (Eric is a Marine, who has been to Iraq), "our son was bound to be a force of nature." Growing up in Tiffanie DiDonato’s house, 'can’t' was considered a four-letter word that was not allowed in her vocabulary. “You could use any other word, (but) I wasn’t allowed to think I was different,” said DiDonato, who was born with diastrophic dysplasia, a rare form of dwarfism that caused her bones and joints to form irregularly, and made everyday tasks like brushing her own hair impossible. VIDEO: Dr. Manny interviews Tiffanie Diastrophic dysplasia is a genetic disorder caused by a gene mutation. It is estimated that about 1 in 100,000 newborns have it, according to U.S. National Library of Medicine.

People:

Tiffanie DiDonato

Overall Sentiment: 0.0120141

Relevance: 0.897449

SentimentQuote
0“You could use any other word, (but) I wasn’t allowed to think I was different,” said DiDonato, ...
-0.214256“They break the bone, although the doctor doesn’t like to use the word ‘break,’” DiDonato told ...
-0.167658“They break the bone, although the doctor doesn’t like to use the word ‘break,’” DiDonato told FoxNews.com. “They cut the bone in half, then insert metal wires and rods. Those rods protrude, (and) stick out of the skin. You take a L-wrench and stick it in the hole and turn it counter-clockwise four times a day. And the fixator attached to the pins starts to move – 1 millimeter per day, so the initial cut that’s in the bone starts to get wider, the space grows and that’s where you get your height.”
0“I noticed such a huge difference when I was 8,” DiDonato said. ...
-0.0779475“I noticed such a huge difference when I was 8,” DiDonato said. “We’re talking about reaching doorknobs. I got stuck in the bathroom at school once because I couldn’t reach the door knob. I’ll never forget that moment.”
-0.058167She said she has “good days and bad days,” ...
-0.033884“The book is not just for those who are curious about dwarfism or for dwarves, but for everyone who has ever been told they can’t do something and then go on to do it anyway,” she said. ...
Sentiment Stats:
  • Number of Quotes: 7
  • Aggregate Sentiment: -0.5519125
  • Mean: -0.078844642857143
  • Standard Deviation: 0

Tiffanie

Overall Sentiment: 0

Relevance: 0.291791

SentimentQuote
0Tiffanie said because of her and her husband's combined histories (Eric is a Marine, who has been to Iraq), "our son was bound to be a force of nature."
Sentiment Stats:
  • Number of Quotes: 1
  • Aggregate Sentiment: 0
  • Mean: 0
  • Standard Deviation: 1.4142135623731

Eric

Overall Sentiment: 0.0584903

Relevance: 0.208856

Titan

Overall Sentiment: 0.0805459

Relevance: 0.195236

Dr. Manny

Overall Sentiment: 0

Relevance: 0.164318

Key:

  • Aggregate Sentiment is meant to be an indicator of an individual's overall sentiment.
  • The Mean is meant to be an indicator of an individual's average comment sentiment.
  • The Standard Deviation, when there are enough quotes, will indicate an individual's consistency of sentiment (i.e. a Standard Deviation of 0 would mean they were very consistent in their sentiment and 1 would mean they were very inconsistent).

Note that quote stats are likely to be meaningless beyond the aggregate score due to the tiny sample size. However, they are always provided just in case you find something useful there.

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